Dear all
The Citizens of Japan suffering from convulsions, seizures,
severe headaches, partial paralysis and a host of other adverse events after
submitting to HPV vaccinations have petitioned their government health
officials to permanently suspend the use of 'cervical cancer' vaccines.
According to testimony presented
to the National Health Ministry by Dr. Sotaro Sato, who has examined many of
the injured girls:
"...the convulsions, inability to walk, and involuntary
movements of hands and toes were caused by encephalomyelitis, or inflammation
of the brain and spinal cord. Cervical cancer vaccines, which are chemically
bound to special types of adjuvants, often trigger encephalomyelitis. Since
the vaccines cause auto-antibodies against the brain's neuronal fibers to be
produced in many cases, they have triggered demyelinating disorders. They
have also induced many cases of cerebral vasculitis."
The SaneVax Team would like to
personally thank Ms. Toshie Ikeda, Hino City Assembly Legislator and
Secretary General, Secretariat of the Nationwide Liaison Association of
Cervical Cancer Vaccine Victims and Parents for providing us with the
following newspaper account of their presentation of five petitions to Health
Minister Norihisa Tamura.
The official newspaper account from
Japan is attached. The article is posted here - http://sanevax.org/breaking-news-japan-and-hpv-vaccines/ -
Please circulate this to everyone
you know. It should serve to encourage those in other countries who are
fighting to obtain the same things these brave people are fighting for.
Perhaps more governments can be convinced to act responsibly.
With best wishes,
Mrs. Freda Birrell
Secretary, SaneVax Inc
KYODO AUG 24, 2013 ARTICLE HISTORY
Teenagers
injured or disabled by cervical cancer vaccines are stepping up efforts to
permanently end the government’s subsidy program for injections of Cervarix
and Gardasil.
On Friday, eight teens, accompanied by their parents, called
out health minister Norihisa Tamura over the issue. The schoolgirls, aged
from 14 to 18 — including four in wheelchairs — and their parents are members
of the Nationwide Liaison Association of Cervical Cancer Vaccine Victims and
Parents.
Tamura was handed five petitions in a meeting with the group
at the Health, Labor and Welfare Ministry, association chief Mika Matsufuji
said afterward. The request to abolish the vaccination program topped the list.
The other petitions included one asking for stronger
government efforts to identify the cause of the side effects and to find
therapeutic remedies. The side effects range from convulsions and seizures to
severe headaches and even partial paralysis.
In April, the Diet revised the Preventive Vaccination Law so
that girls aged 14 to 18 could get the cervical vaccine shots for free.
But an advisory panel to the health ministry later urged that
the government stop recommending vaccinations for cervical cancer after
concluding the reported symptoms were likely being caused by the vaccines.
The ministry reportedly complied on June 15 by telling local
governments to stop recommending that girls 12 to 16 get vaccinated with
Cervarix or Gardasil in light of reports about chronically adverse reactions.
The local governments, acting on behalf of the central government, had been
telling teens to get the shots.
At Friday’s meeting with Tamura, the schoolgirls, parents and
the association asked the government to revise the vaccination law again to
officially remove cervical cancer vaccines from the list of those subsidized
by the central government.
“There is not a single moment when I am not suffering pain,
and I want the government to find a remedy,” said a 17-year-old high school
senior from Yokohama.
“I do not want the government to resume recommending this
vaccine.”
The girl said she started getting severe pains throughout her
body, including her head, after receiving her third Cervarix injection in
April 2011. The process requires three injections in six months.
A 16-year-old in a wheelchair whose hands and legs were
convulsing during the meeting with Tamura and at the news conference, said
she can’t possibly be alone.
“There must be numerous girls who are suffering symptoms
similar to mine without knowing their conditions stem from the vaccines.
“I took this action (going to the press) because I want those
girls to become aware of the link” between the vaccines and their disorders,
she said.
Toshie Ikeda, a member of the Hino Municipal Assembly who has
been secretary-general of the association and attended Friday’s meeting with
Tamura, quoted him as saying: “I am aware of the necessity to create a team
to study this problem and gather information on the actual state of damage
that has been inflicted nationwide.”
Matsufuji, whose daughter is among the four in wheelchairs,
quoted the minister as telling the petitioners that the decision will be made
after the government completes its investigation.
According to Dr. Sotaro Sato, who has examined many cervical
vaccine victims, the convulsions, inability to walk, and involuntary hand and
toe movements are being caused by encephalomyelitis, or the inflammation of
the brain and spinal cord.
“Cervical cancer vaccines, which are chemically bound to
special types of adjuvants, often trigger encephalomyelitis,” he said.
“Since the vaccines cause autoantibodies against the brain’s
neuronal fibers to be produced in many cases, they have triggered
demyelinating disorders,” he said, adding they have also induced many cases
of cerebral vasculitis.
Cerebral vasculitis causes the body’s immune system to attack
blood vessels in the brain, often leading to hemorrhaging, said Sato, who
runs a hospital in Osaki, Miyagi Prefecture.
The marketing of Cervarix, made by GlaxoSmithKlein PLC of
Britain, was approved in 2009. This was followed by Gardasil, made by Merck
Sharp & Dohme (better known as Merck & Co. in the U.S.), in 2011.
The ministry says that it has received a total of 1,968
reports of adverse reactions and that 3.28 million girls had been vaccinated
as of March 31. The association says that’s just the tip of the iceberg.
Ikeda said doctors often reject pleas from their patients’
parents to file reports about adverse reactions, which are needed to obtain
compensation from the government.
This is either because they are afraid of being held
responsible for the shots or because they are ignorant the vaccines can
produce side effects, he said.
|
Sunday, August 25, 2013
From SANEVAX: Japan: Victims Hit Cervical Cancer Vaccines Paralyzed Teens, Parents Demand Subsidized Shots Be Eradicated
Saturday, August 24, 2013
ONE DAY IN MY LIFE AFTER GARDASIL: ONE MORE DAY – A DAY IN MY LIFE POST-GARDASIL
AUGUST 23,
2013 BY ADMIN LEAVE A
COMMENT
[SaneVax: Brittney
Fiste eloquently describes a single day in her
life after Gardasil. Despite her nearly six-year long battle to
conquer the negative side effects, Brittney and her mother, Roxie, have
dedicated their lives to warning others of the need to educate themselves
about the real risks versus the perceived benefits of using HPV vaccines as a
method to potentially avoid cervical cancer.]
ONE MORE DAY – A DAY IN MY LIFE
POST-GARDASIL
By Brittney Fiste (re-published
with authors’ permission)
POST-GARDASIL: A DAY IN MY LIFE
My head feels strange, like I might have a seizure today.. It
is difficult to explain, but Mom seems to understand what I mean. She tries
to get my breakfast made as quickly as possible. My legs are so unstable so
decide to sit in my favorite recliner – maybe watch one of the shows I
recorded while my food is being made.
The pain in my head, the pressure especially is worse right
now. Brain fog is preventing me from understanding what is going on in the
program.
Thankfully, Mom arrives with my scrambled eggs, gluten
free English muffin, grapes, mint tea. She knows my stomach is not the
greatest, but I am hungry! She sits with me for a few minutes while we
eat. We talk a little but my mind isn’t thinking so clearly. That weird
feeling in my head is worse. As Mom heads back upstairs with my tray I ask
her for some sparkling water for my stomach.
The blinding pain hit me like a white-hot knife cutting
through my head.. It was a searing series of jolts, like I was being
electrocuted multiple times. Mercifully, an inky blackness spreads over me
and everything goes dark.
Even though I’m pretty sure I’m still on the recliner I am
only vaguely aware of choking on the foam that has risen in my throat during
the seizure. I can feel Mom trying to wipe my mouth with a tissue. She lets
me tug it from her hand to clear my mouth better. It hurts incredibly to
move, but I need to get to bed. The pressure is worse in my head now.
The weird sensation is rising from my stomach into my head.
Have to tell Mom, but my vocal cords are frozen.. I’m blind as well from the
first seizure. Even my hearing is gone. All I can do is make motions with my
hands, but Mom understands enough to lower the recliner, ease me forward,
then slowly get me to my feet.
It’s a struggle to do any of it but will my body to stand. Oh,
how I wish my legs would cooperate! They are weak, trembly, and unsteady.
Can’t blame them, they have very little feeling left from mid thigh down. Mom
slides my arms around her shoulders, then leads me to my bed – Slowly, Mom,
legs are protesting, my mind tries to shout. After what seems like forever we
reach my bed. Mom helps guide my hands to the edge, helping me find the
blessed pillows. It’s so hard to lift my legs, but finally I’m safe on the
mattress, before another seizure hits.
I have no idea how long I’ve been lying in bed when my
consciousness returns. Without vision, hearing or speech it is impossible to
know anything safe for the new levels of pain that run from my head to my
upper thighs. Everything is achingly tender. I flinch when Mom gently strokes
my ear.
She pulls her hand away not knowing how to comfort me. While
attempting to sign to her I discover the Blood pressure cuff is still on my
arm – It hurts! Must have whimpered because Mom quickly got it off. I
sign again to the open air, hoping Mom will understand. She gives me her hand
so I can spell out short words.
She squeezes my hand once – Yes! She understands my request!
(We worked out a system to communicate when all of my other senses flee after
a seizure. Squeeze once for Yes, squeeze twice for No. And when my confusion
clears enough we spell into each others hand to ask or answer questions.)
After giving me a drink to clear my throat, Mom let’s me rest
– I truly need rest to recover. My body won’t cooperate, needing a trip to
the bathroom. After locating the wall by my bed, I begin to knock. I don’t
know how loud it is but Mom is quickly by my bed. She holds my hand to let me
know, but I flinch again from the pain. That hand is swollen a bit as well.
Mom waits for me to sign, which is easy this time. She gently guides me to
and from my destination. Helping me as best she can. Finally back in bed, she
signs into my left hand to rest. Wish my hearing would release – I need to
listen to my ocean CD. It is so relaxing..
After lying in my bed a few minutes, aching from the seizures,
my hearing suddenly returns. Silent Tears slide down my face unbidden, but I
can’t help it. Every time my senses begin to return, there is relief, joy,
thankfulness. Knocking on the wall again, Mom returns, but I can hear her softly
speaking, praying for me. When I respond she is also relieved that my hearing
returned. She immediately turns on my ocean waves CD. She whispers she loves
me, then allows me to drift fitfully to sleep.
Several hours later I awake, realizing immediately that my
vision is returning. It isn’t the greatest, but I have color and can
distinguish objects. My legs are a little less wobbly so I can get my own
water. Eventually I can get out of bed, go up to the kitchen to see my mom.
She is surprised that I’ve negotiated the steps on my own, giving me a smile
and a gentle hug. My body feels I have been in the fight of my life, tender,
aching, sore, but my head pressure is improved some. The weird sensation is
almost gone.
Mom notices one of my eyelids is drooping, but it’s hard to
miss. She just smiles, and then asks me if I’m hungry. Since my voice hasn’t
returned I sign in a little while. After I get a glass of mint tea, Mom helps
me back down to the family room.
My vision still isn’t the greatest but I can watch Duck
Dynasty! The show makes me laugh which I desperately need until supper.
My stomach isn’t doing the best right now. Ate something with
gluten a couple of days previous, so I’m paying for it. Mom has given me
several choices for supper, but nothing sounds good. My dad had just finished
eating, giving me a soft kiss in the forehead. He has to go to a meeting at
church, so he can’t linger but a few minutes. How I miss our dates we had
while growing up! It’s been a long time since we’ve been able to have dinner
and a movie night. I smile at my dad, trying not to let him see my pain. The
vaccine injury has been very hard on both my parents. Not an easy thing to
live with, but this is my life now.
Mom finally makes me quinoa with chicken and organic veggies –
it tastes good so digesting will be easy, I hope. After watching a movie with
mom I decide to take a shower. Couldn’t get my IV today, but I’m very
determined to go tomorrow! Mom isn’t crazy about the Idea, but lets me know
she will be close by. I am thankful that I can do this much finally, but
knowing she’s close if I need help is reassuring. After my second dose of
Gardasil Mom had to bathe me, feed me; help me in and out of my wheelchair.
Six years later I’m doing some things on my own again!
During my shower I begin to overheat. Reducing the water
temperature isn’t helping. My head and stomach are way too hot now, so I
quickly shut off the water, open the door while trying to call for mom. Even
with the door wide open, my towel is too hot as well. As the waves of nausea
strike, I grab my trash can. Mom arrives as I lose my super.
My body really seems to hate me, though my voice has
unexpectedly returned! At least something positive has just happened!
Wobbly legs and trembling arms prevent me from drying off quickly. With Mom’s
help though, I’m partly dressed by the time I hit my bed. My face is on fire
from the flaming nerve endings that bloom on my body randomly. The nausea is
pretty bad, but mom fans me best she can. Finally, after what seems an
eternity, the flame in my face and stomach fades. I’m still trembling from
the exertion but at least I’m not tossing my cookies.
Mom gets me something for my stomach, Bromalain – best thing
I’ve ever tried for nausea! It settles my stomach to the point I can finish
getting ready for bed. Thank you, Lord, for getting me through one more
day. Tonight, hopefully I will sleep. Tomorrow will be a better day…
Brittney and Roxie Fiste
(Hormones MatterTM is
conducting research on the side effects and adverse events associated with
Gardasil and its counterpart Cervarix. If you or your daughter has had either
HPV vaccine, please take this important survey. The link to the survey is at
the end of Brittney’s article.)
Other side of the story: Members of a support group for people injured by cervical cancer vaccines face reporters Friday in Tokyo after they filed a request for the government to end subsidies for the injections. | KYODO
KYODO AUG 24, 2013 ARTICLE HISTORY
Teenagers injured or disabled by
cervical cancer vaccines are stepping up efforts to permanently end the
government’s subsidy program for injections of Cervarix and Gardasil.
On Friday, eight teens, accompanied by their parents, called out
health minister Norihisa Tamura over the issue. The schoolgirls, aged from 14
to 18 — including four in wheelchairs — and their parents are members of the
Nationwide Liaison Association of Cervical Cancer Vaccine Victims and Parents.
Tamura was handed five petitions in a meeting with the group at
the Health, Labor and Welfare Ministry, association chief Mika Matsufuji said
afterward. The request to abolish the vaccination program topped the list.
The other petitions included one asking for stronger government
efforts to identify the cause of the side effects and to find therapeutic
remedies. The side effects range from convulsions and seizures to severe
headaches and even partial paralysis.
In April, the Diet revised the Preventive Vaccination Law so
that girls aged 14 to 18 could get the cervical vaccine shots for free.
But an advisory panel to the health ministry later urged that
the government stop recommending vaccinations for cervical cancer after
concluding the reported symptoms were likely being caused by the vaccines.
The ministry reportedly complied on June 15 by telling local
governments to stop recommending that girls 12 to 16 get vaccinated with
Cervarix or Gardasil in light of reports about chronically adverse reactions.
The local governments, acting on behalf of the central government, had been
telling teens to get the shots.
At Friday’s meeting with Tamura, the schoolgirls, parents and
the association asked the government to revise the vaccination law again to
officially remove cervical cancer vaccines from the list of those subsidized by
the central government.
“There is not a single moment when I am not suffering pain, and
I want the government to find a remedy,” said a 17-year-old high school senior
from Yokohama.
“I do not want the government to resume recommending this
vaccine.”
The girl said she started getting severe pains throughout her
body, including her head, after receiving her third Cervarix injection in April
2011. The process requires three injections in six months.
A 16-year-old in a wheelchair whose hands and legs were
convulsing during the meeting with Tamura and at the news conference, said she
can’t possibly be alone.
“There must be numerous girls who are suffering symptoms similar
to mine without knowing their conditions stem from the vaccines.
“I took this action (going to the press) because I want those
girls to become aware of the link” between the vaccines and their disorders,
she said.
Toshie Ikeda, a member of the Hino Municipal Assembly who has
been secretary-general of the association and attended Friday’s meeting with
Tamura, quoted him as saying: “I am aware of the necessity to create a team to
study this problem and gather information on the actual state of damage that
has been inflicted nationwide.”
Matsufuji, whose daughter is among the four in wheelchairs,
quoted the minister as telling the petitioners that the decision will be made
after the government completes its investigation.
According to Dr. Sotaro Sato, who has examined many cervical
vaccine victims, the convulsions, inability to walk, and involuntary hand and
toe movements are being caused by encephalomyelitis, or the inflammation of the
brain and spinal cord.
“Cervical cancer vaccines, which are chemically bound to special
types of adjuvants, often trigger encephalomyelitis,” he said.
“Since the vaccines cause autoantibodies against the brain’s
neuronal fibers to be produced in many cases, they have triggered demyelinating
disorders,” he said, adding they have also induced many cases of cerebral
vasculitis.
Cerebral vasculitis causes the body’s immune system to attack
blood vessels in the brain, often leading to hemorrhaging, said Sato, who runs
a hospital in Osaki, Miyagi Prefecture.
The marketing of Cervarix, made by GlaxoSmithKlein PLC of
Britain, was approved in 2009. This was followed by Gardasil, made by Merck
Sharp & Dohme (better known as Merck & Co. in the U.S.), in 2011.
The ministry says that it has received a total of 1,968 reports
of adverse reactions and that 3.28 million girls had been vaccinated as of
March 31. The association says that’s just the tip of the iceberg.
Ikeda said doctors often reject pleas from their patients’
parents to file reports about adverse reactions, which are needed to obtain
compensation from the government.
This is either because they are afraid of being held responsible
for the shots or because they are ignorant the vaccines can produce side
effects, he said.
|
Friday, August 16, 2013
My Daughter, Cervarix and ME/CFS: Coincidence?
AUGUST
14, 2013
By Carol Green
Myalgic Encephalomyelitis
(ME)/Chronic Fatigue Syndrome (CFS) is a severe, complex, acquired
illness with numerous symptoms related mainly to the dysfunction of the
brain, gastro-intestinal, immune, endocrine and cardiac systems. Our family
had no idea how familiar we would become with this particular disorder after
vaccinating our 15-year-old daughter with Cervarix to ‘protect her’ from
cervical cancer.
When
Katie received the Cervarix vaccinations in 2009, she was 15 years old and in
her GCSE year at Hanley
Castle High School. She was doing very well at school, achieving good
grades and hoped eventually to go to university. Prior to the vaccination,
she was extremely fit, playing regional rugby, attending a High Performance
Academy for under 18 Girls’ Rugby in Bristol and trials for selection for
England’s Under 18 Girls’ Rugby. She also played Girls’ County Cricket.
IMMEDIATE EFFECT OF THE 2nd CERVARIX VACCINATION:
The
next morning, Katie had to be woken up by us as she had over-slept. She
felt very groggy, nauseous and dizzy. She had even wet the bed! Although she
could still eat at this time, she felt sick whenever she did. She
also had an enormous, red lump at the site of the vaccination – about the
size of a half-boiled egg (this was about 3 times the size of lump after the
first vaccination). All these symptoms appeared on the vaccination leaflet,
so we assumed Katie would just recover.
Unfortunately,
when she struggled to school the following week, she deteriorated further.
She had such severe vertigo that she could hardly walk. Her eyes could
not focus (especially when she tried to read), she was only able to eat a
tiny amount of pureed food as she felt so nauseous and she was extremely
fatigued. At this point we went to our GP who sent her straight to
hospital. Despite extensive tests, they could find no cause, so Katie
was sent home.
A
diagnosis of ME/CFS was finally confirmed by a consultant of immunology and
infectious diseases in 2011.
THE LASTING EFFECTS OF THE VACCINATION:
Katie’s
life has been severely affected by the ME/CFS. She was house-bound –
for the first 3 months at least, she could barely walk and could only eat
foods if they had been liquidized, for at least 5 months. She had so
little energy, that she was resting most of the day and sleeping for several
hours each day. Katie has suffered off and on with various, unexplained
pains – in joints, in her abdomen, migraines that she never had
previously. She had a very bad spell during January and February 2011
where she had extreme insomnia and was utterly exhausted – not able to do
anything!
Katie
is now physically able to do more than she could immediately after the vaccination,
such as gentle walking or shopping. But if she does too much, she is tired
over the next day or so. She has tried to go back to school (Hanley
Castle 6th Form), but found it too much to cope with. She
finds it hard to concentrate, difficult to recall specific words and when she
is doing anything mentally challenging it really tires her out. Finally,
after her third attempt to return to 6th Form in 2012, her GP
recommended that she stop after only two weeks because she was so ill again.
CURRENTLY:
At the
moment, she is claiming Employment Support Allowance; however, the recent
medical assessment by the DWP decided that she had no medical reason not to
work despite support from her GP. We have since appealed and will now
have to go to a tribunal.
We also
submitted a claim for Vaccine Damage Compensation which was also
rejected. We are still in the process of submitting an appeal which was
delayed as the solicitor that was working for us decided he could not prove
the necessary causation (despite the temporal link and the letter from our
GP). Feeling totally inadequate to pursue this matter alone, we met
with our local MP, Harriet Baldwin.
ADDITIONAL READINGS
Secret
papers hidden in archives for years clearly show that when medical
researchers applied for funding to study the link between vaccinations and
the debilitating condition known as ME/CFS in more detail, their applications
were turned down in favor of psychiatric research, which was said to be
preferable.
For many years, researchers and medical professionals have
suspected that there could be a link between vaccinations and ME/CFS. This
has been difficult to prove because much of the evidence supporting the
ME/CFS/vaccination link has either been suppressed or ignored for a variety
of reasons.
Before exposing secret documents that have been hidden from
the public view since the 1990’s, I will explain what is meant by the term
ME/CFS.
WHAT
IS ME? WHAT IS CFS?
Try to imagine that you have been to bed after a long day at
the gym and you wake up with all your muscles sore and achy. That is how a
sufferer with the condition myalgic encephalomyelitis (ME) feels every day.
Every single movement becomes painful and requires a massive amount of
effort.
Chronic Fatigue Syndrome (CFS) is a condition where the
patient suffers from total, utter exhaustion. However, unlike normal
exhaustion, which can be overcome after a good night’s sleep, CFS does not
improve with sleep or rest. [1]
According to one website, “several countries currently call
the condition myalgic encephalomyelitis, ME/CFS or CFS/ME with some experts
preferring to use the terms interchangeably, while others consider one a
subgroup of the other.
In the United States, advocates are working to have the name
of CFS officially changed to ME/CFS due to the widespread belief that the
name CFS trivializes the condition and leads to misperceptions of it.
Disagreement over whether encephalomyelitis or encephalopathy is more
accurate led to the decision to push for the simple acronym ME.
Myalgic means muscle pain or tenderness. Encephalomyelitis
means inflammation of the brain and spinal cord. Encephalopathy means altered
brain function and structure caused by diffuse brain disease.” [2]
CFS/ME affects people in different ways. No two people
experience the illness in the same way. Anyone at any age can be
affected. Sufferers often endure severe and debilitating fatigue, painful
muscles and joints, disordered sleep, and gastric disturbances. Poor
memory and concentration are commonplace. In many cases, onset is linked to a
viral infection. Other triggers may include an operation or an
accident, although some people experience a slow, insidious onset. [3]
THE DIRTY NOT-SO-LITTLE SECRET
According to paperwork supplied to me by an interested party,
grants have been denied to researchers studying a possible link between
vaccinations and ME/CFS. The documents were only discovered when they became
the subject of a Freedom of Information request.
(It is
interesting to note that every document carries a stamp saying ‘closed
until 2071.’)
In 1992, Doris Jones, a postgraduate medical research student,
applied for funding from the Medical Research Centre (MRC) to research what
she believed to be the link between vaccinations, antibiotics and the
subsequent development of ME/CFS.
On May 25, 1992, Jones wrote a letter to Dr. Peter Dukes of
the MRC, stating how a Ciba (Ciba Geigy Corporation, a Swiss pharmaceutical
company now owned by Novartis) open meeting that she attended had been a
unique experience for her. She explained that although she did not belong to
the medical profession and was not affiliated with any patient organizations,
she was studying the subject of ME/CFS for her postgraduate degree.
She described how shocked she was that there had been what she
described as “a huge chasm between how the illness was perceived by general
practitioners and psychiatrists compared to how it affects sufferers in real
life and what its true nature may turn out to be.”
Ms. Jones described in depth a comprehensive, multifactorial,
epidemiological research project that she had recently completed on ME/CFS.
Enclosing the abstract for Dr. Dukes to read, she wrote:
“You will
note that details on associated factors like vaccinations, antibiotics and
allergies may be especially relevant, as may those on diet, stress and
earlier infections. It is disconcerting that some of these associated factors
can also be seen in certain apparently healthy subjects, notably in normal
students, which seems to coincide with concurrent emergence of similar
symptomatology.”
She backed up her theories with references to other
published research, in particular the work of Professor Behan. She
enclosed one of his papers for Dukes to read. She wrote:
“Indeed one of
Professor Behan’s teams recently identified sequences of an enterovirus which
were identical to the polio vaccine virus in a proportion of carefully
selected PVPS patients.”
Jones offered various other examples of carefully researched
material to support her claims, mentioning various vaccinations and
antibiotics as possible triggers to ME/CFS.
Although Jones appeared to supply the MRC with sufficient
documented evidence for funding to be granted, she was turned down in favor
of other research projects that supplied less evidence to support their
application.
At the time of her application, ME/CFS was being portrayed as
a psychiatric disorder and Jones wished to dispel this myth, proving that
ME/CFS was in fact a physical disorder caused by vaccinations, in particular
the tetanus vaccination and/or antibiotics.
UNNECESSARY HUMAN SUFFERING
It is interesting to note that Ms. Jones may have hit the nail
well and truly on the head as to why she was refused funding, when she
innocently wrote:
“You may agree
that in the circumstances an in depth large-scale epidemiological research
project into the disorder would seem advisable. Whilst possible
consequences for the pharmaceutical industry need to be considered
of course, these surely should be offset against not only an incalculable
amount of perhaps unnecessary human suffering, but also against what may be a
rapidly growing number of middle-aged or even quite young incapacitated,
perhaps permanently disabled and STATE BENEFIT Dependent subjects!” (emphasis
added)
The documents demonstrate evidence
of how various discussions between Ms. Jones and the MRC grew quite heated,
especially when it appears the MRC did not seem the slightest bit interested
in supporting Jones’s application, advising her instead to apply to a
charity for funding!
Was it because research into vaccinations and antibiotics is
financially beneficial to the pharmaceutical industry and therefore, not a
viable option for research? It certainly appears that way when reading the
supplied document.
On December 22, 1992, the MRC wrote to Jones, seemingly
rebutting her suggestion that it was because she was studying vaccinations as
a trigger for ME/CFS that they were refusing her application. They claimed
that it was more to do with the fact that she was not “competitive,” stating:
“You suggest that
there may be a link between vaccinations and ME. The sequelae of
immunisation in general is of an area in which the Health Departments in
particular have a special interest. The problem is to establish the
specificity of that link to CFS. I can however assure you that the MRC
is certainly not reluctant to support research or any other area
that may be related to CFS, as long as it is competitive.” (emphasis
added)
PLAYING FAVORITES
It appears from reading the documentation that instead of
researching a wide range of possible causes, the MRC continually favored
research undertaken by the Institute of Psychiatry, stating this fact in at
least three documents.
On March 24, 1992, Dukes wrote to an unknown source (which,
due to the content, I believe to be Ms. Jones), stating:
“As you suggest,
the council does fund work on CFS at the Institute of Psychiatry, an
institution with a distinguished record of research spanning disciplines such
as neurology and neuropathology and not only psychiatry. The project you may
be referring to is entitled “An Epidemiological Approach to the Study of
Chronic Fatigue Syndrome.”
It was later revealed that the MRC had given the Institute of
Psychiatry £91,000 to fund research. In a 1995 letter to a Ms. Heather White,
Department of Health, they wrote:
“The
investigators planned to study the prevalence of CFS amongst consecutive
general practice attenders aged 18-45, together with exploration of
associated demographic, clinical and psychosocial variables. In addition,
they planned to identify patients suffering from prolonged fatigue following
viral infections and determine how many met a case definition of CFS. We have
not yet received a final report detailing the findings of the study.
I should point
out that we receive very few grant applications concerning CFS and apart
from the epidemiological study mentioned above, none have been of
sufficiently high scientific quality to merit funding.” (emphasis
added)
Obviously researching vaccinations and antibiotics as a
possible trigger of ME/CFS was not scientific enough to meet the ‘high
standards’ required by the MRC. It is a real shame that the MRC did not
realize Doris Jones’s true potential, as she went on to gain a Master of
Science degree and publish a selection of papers on the subject. One of her
papers titled ‘ME and Vaccinations’ [4] was published in 1997 and read:
“Cases where ME
subjects had been vaccinated in the month before developing an infection
and/or other health problems which resulted in ME, attracted my particular
attention; in some instances there were no infections – an immunization alone
seemed to have triggered the onset of ME. There was also a small group who
informed me they had received long term corticosteroid treatment for health
problems before receiving a vaccination which triggered their illness.
Significantly perhaps, adverse reactions to vaccines, drugs as well as
sensitivities to chemicals and foods were reported with almost predictable
regularity. Results of my study were first shown at the International
Conference on Chronic Fatigue Syndrome, Dublin, in 1994.”
CONCLUSION
By cherry picking their research preferences, the MRC has
potentially condemned many to suffer a life blighted by this tragic
condition. Instead of funding studies researching a variety of possible
causes, it appears the MRC only choose to fund the ‘it’s all in the head’
theories drummed up by psychiatrists only interested in lining their own
pockets. It is a pity they have such a closed view when handing out financial
support. How can we ever learn more about this debilitating disorder when
research is being suppressed in this appalling manor?
- See more at: http://vactruth.com/2012/10/06/chronic-fatigue-syndrome-vaccinations/#sthash.k9iZ8hmk.dpuf
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