FEBRUARY 24, 2014 By Norma Erickson, President
SaneVax Inc.
Tuesday, February 25, 2:30 p.m. Tokyo time marks the beginning
of an International Symposium on the adverse reactions experienced by
girls who have been vaccinated by Human Papillomavirus vaccines.
This symposium was
organized on behalf of The Researchers’ Organization Sounding a
Warning concerning the Adverse Reactions induced by Human Papillomavirus
Vaccines, through the collaborative efforts of Dr. Harumi Sakai, former
Professor at the Tokai University School of Medicine, Dr. Shohei Matsuzaki,
Professor Emeritus at the Tokai University School of Medicine, Mutsuo
Fukushima, Kyoto News International Department, and SaneVax Inc.
This event will give a voice to the thousands of young women
and families around the world who have suffered debilitating side effects,
sometimes death, after using HPV vaccines.
Many of these families have been told these events are
psychosomatic or coincidental.
In fact on January 20, 2014, the Japanese government’s
advisory council released an official report quite typical of those issued in
other countries in which they dismissed all of the symptoms that have shown
up in the bodies of vaccinated girls as the consequences of psychogenetic
“psychosomatic reactions” – in other words, the consequences of mental
reactions of girls who the council suggested in a sophisticated manner may
have been spoiled by mothers who do not know how to give discipline to their
girls.
According to Kyoto News Reporter, Mutsuo Fukushima, the key
proponent of this theory is Dr. Yutaka Ohno of Keio University, who has
stated publicly:
“It is impossible to find
physical causes for the alleged and presumed adverse reactions at those
vaccinated girls, so we cannot help concluding that their so-called adverse
reactions are the mere consequences of psychosomatic reactions. The
government should provide counselling to the girls so that they may be freed
from their psychosomatic reactions.”
The organizers of this symposium, along with countless others,
find this callous lack of concern for the victims of adverse reactions to HPV
vaccines appalling. They want the world to know there are several
biologically plausible mechanisms of action via which Gardasil and Cervarix
could precipitate these events.
They want the world to know what their research shows in the
hope of halting HPV vaccination campaigns until these mechanisms of action are
identified, and quantified, so those most at risk can be eliminated from any
future HPV vaccination programs. Above all, they want the world to know there
are those who will not give up working until the devastation following in the
wake of mass HPV vaccination programs is stopped.
Symposium Calendar of Events:
1.
International Symposium on the Adverse
Reactions experienced by girls who have been vaccinated with Human
Papillomavirus Vaccines (Gardasil and Cervarix) – February 25th from
2:30 to 5:30 p.m. – Tokai University Extension Center, 35th Floor,
Kasumigaseki Building, Tokyo, Japan
2. Press
Conference for reporters from newspaper companies and TV broadcasters –
open to the public – February 25th from 5:45 to 7:30 p.m. –
same venue as above
1.
Dr. Lee, Professor Authier, Lucija Tomljenovic PhD, Dr.
Sasaki, Dr. Shiozawa, Dr. Uhide Kiyoshi, Dr. Hama and Mutsuo Fukushima will
be available to answer questions from the public and the press.
3. Government-Sponsored
Public Hearing of the Health Ministry’s Advisory Council for the
Deliberations on the Reported Adverse Events of HPV Vaccines, the advisory
panel consisting of 15 scientists – February 26th, 10:00 to 11:30
a.m. (Evidence to be presented by scientists and medical professionals from
the United States, Canada, France and Japan regarding potential mechanisms of
action between HPV vaccines and serious adverse events.)
4. Briefing on HPV
Matters to Influential Lawmakers of the Ruling Liberal
Democratic Party (LDP) – February 26th from 12:00 to 1:30
p.m. – at the room of Chairman Eriko Yamatani of the LDP Policy Deliberations
Committee at the House of Councilors in the upper chamber of Japan’s
bicameral parliament.
5.
Press Conference – February 26th beginning
at 5:45p.m. In the press room of the Japanese Health Ministry.
Symposium Participants:
§
Organizer: Harumi Sakai, MD, former Professor,
Tokai University School of Medicine
§
Co-organizer: Shohei Matsuzaki, MD, Professor Emeritus,
Tokai University School of Medicine
§
Interpreter: Mutsuo Fukushima, Reporter, Kyodo News,
International Department
§
Sin Hang Lee, MD, former Yale University Associate
Professor, Pathologist at Milford Hospital, Director of Milford Medical
Laboratory, Inc.
§
Franҫois-Jerome
Authier, MD, Universite Paris XII, Systeme Hospital Henri Mondor de Paris
§
Lucija Tomljenovic, PhD, Research Associate, British
Columbia University, Canada
§
Mirna Hajjar, MD, Department of Neurology, Hartford
Hospital, Hartford Connecticut
§
Masayuki Sasaki, MD, National Center of Neurology and
Psychiatry, Director of Child Neurology
§
Shunichi Shiozawa, MD, Professor, Kyushu University
Hospital
§
Uhide Kiyoshi, MD, Assistant Professor, Kanazawa
University
§
Rokuro Hama, MD, Director, Japan Institute of
Pharmacovigilance (non-profit organization)
How And Why Was This Symposium
Organized?
Early in September 2013, the Secretary General of the
Nationwide Liaison Association of Cervical Cancer Vaccine Victims and Parents
in Japan, and Mr. (Francis) Mutsuo Fukushima, journalist with the Kyodo News,
informed the SaneVax team that there were rumors of a delegation from the
Japanese Ministry of Health planning to visit London in October to have
discussions on the HPV vaccines with officials in the UK Department of Health
and the Medicines and Healthcare Products Regulatory Agency (MHRA).
It was thought that this delegation may be willing to speak
with scientific and medical experts who were independent of pharmaceutical
industry ties. Knowing what this delegation would hear from the official
sources, the SaneVax Team felt it would be critical for this delegation to
speak with medical and scientific professionals who had no ties to the
pharmaceutical industry.
Prior to official confirmation of this meeting, Norma
Erickson, President of SaneVax Inc. and Freda Birrell, Secretary provided
their new contacts with information relating to many cases of young girls who
had also been harmed by the HPV vaccines, Cervarix and Gardasil, in other
parts of the world. The adverse events being reported in Japan were
almost identical to those being reported in every country where these
vaccines were administered.
This fact alone seemed to indicate that the adverse events
should not be regarded as a coincidence. The entire SaneVax Team thought
it critical to demonstrate that this was a global problem. The young women of
Japan were not the only ones suffering after HPV vaccinations. The more
information sent to Japanese contacts, the more everyone agreed that
independent experts had to be heard.
Following many discussions, SaneVax obtained confirmation from
Mr. Tetsuya Miyamoto, Director of the Office of Vaccination Policy at the
Ministry of Health, Labor and Welfare’s Health Policy Bureau and a qualified
medical doctor in his own right, that he was leading a team embarking on a
fact finding mission regarding HPV vaccines. He indicated that he and his
team would be willing to meet with independent scientists and a doctor from
London on Monday, 7th October 2013 at the Double Tree by Hilton Hotel in
London.
This meeting was scheduled to begin at 2 pm and last for 2
hours. His team consisted of first class medical doctors from two of
the six university hospitals in Japan which had been entrusted with official
research efforts to shed light on potential cause-and-effect relationships
between HPV vaccines and adverse effects being experienced by young girls in
Japan.
Those attending this very important meeting on behalf of
SaneVax were: Dr. Sin Hang Lee, MD, Pathologist, Milford Hospital,
Director, Milford Medical Laboratory Inc., and former associate professor of
pathology at Yale University; Professor Francois Jerome Authier, MD, PhD,
Reference Center for Neuromuscular Disorders, Henri Mondor Hospital, Paris
and Dr. Damien Downing, MB BS, MIBiol from London who is a pioneer of
Ecological Medicine. Also in attendance at this meeting were Mrs. Freda
Birrell, Secretary of SaneVax Inc. and her husband David Birrell, VAERS
Research Analyst for SaneVax Inc.
Our team in London was treated with the greatest of respect by
Mr. Miyamoto and his fellow doctors. They listened attentively to all that
was said and watched diligently the excellent power point presentations –
stopping many times to ask very important questions. A Japanese
interpreter was also in attendance.
At that time, we understood that there would be the
opportunity for a further meeting organized by SaneVax to be held in
Washington, DC when the Japanese delegation visited officials from the FDA
and the CDC. The Japanese delegation did visit Washington, later than
expected because of the breakdown in the U.S. government administration.
There was no opportunity for a second meeting with SaneVax representatives to
take place.
Therefore, the London meeting became very important as it has
proven to be the catalyst for the historic events now scheduled to take place
in Japan on the 25th and 26th February 2014.
For the first time in the history of public immunization
campaigns, government officials are willing to listen to the voices of truly
independent scientists and medical professionals regarding vaccination policy
and immunization practices. This is something that should have happened decades
ago. Perhaps the meetings in Japan will herald the beginning of a new medical
paradigm.
At the very least, the meetings will provide a voice for
thousands of young people and their families who are having to cope with the
sometimes debilitating effects of HPV vaccination use.
The SaneVax Team would like to express their sincere
appreciation to those who organized this symposium for allowing us the
opportunity to assist in the planning and coordination. It has been an honor
to be a part of such a historic event.
This may be the beginning of the end to the devastating health
changes experienced by some families after HPV vaccinations.
Gardasil: Ashlie’s Near-Death ExperienceFEBRUARY 17, 2014 By Shawna Snyder, Big Bear City, California
Who would have ever thought a single injection of
the HPV vaccine, Gardasil, could bring my precious daughter to the brink of
death? My daughters, Ashlie and Lyndsie, were both injected with the Gardasil
on the same day. Lyndsie had no adverse reaction. Ashlie was not so lucky.
Ashlie has always been bigger than life. A girl
who we know can handle anything. At the age of 4, Ashlie decided she
wanted to dance. She was shy and didn’t like people staring at her, so we
knew that this little endeavor would be short lived. We could not have
been more wrong. As Ashlie became older, we knew she had found her passion
and career in life. She was going to be a professional dancer and she was on
her way.
How Could We Have Known One Vaccine
Would Change Our Lives And Her Life So Drastically?
In the middle of June 2009, Ashlie received her first
and only Gardasil vaccine. Ashlie’s older sister Lyndsie was also
vaccinated with Gardasil on the same day and had no adverse reaction. For
that I am thankful.
However, approximately 16 days later Ashlie began to
complain that her legs were not working correctly. Looking back, I am
not sure what I thought it was, but I had her take some Tylenol. The
next morning, I came downstairs and Ashlie was lying on the couch watching
TV. She told me that she had crawled from her room and down the stairs
to get to the couch.
She informed me
she could not walk. I asked her to stand. She tried and fell to the floor.
She was quickly taken to our local ER. The doctor threw
his hands in the air saying he had no idea and it must be growing pains. She
was given crutches and a prescription for steroids. I took her home
convinced the doctor was wrong, as I am a mother of 5 daughters and had never
witnessed growing pains like that.
Ashlie had been diagnosed with epilepsy when she was
10-years-old. I thought she perhaps had had a new seizure I was not
aware of, so I called her neurologist. I was assured it was not a seizure,
but to bring her to the ER (a different ER) in the morning as they were very
crowded and she would be seen faster in the morning and we would get home
quickly.
Later that night, I helped Ashlie in and out of the
bathtub because she could no longer walk. I went to hand her something and to
my horror discovered that her arms and hands were not working either. She
literally could not pick up what I was handing her.
After a few phone calls, I rushed Ashlie to an ER over
an hour away, the same ER we were to visit in the morning. I carried
her in, and for a crowded ER on a Saturday night, she was seen within 1 hour.
One of the phone calls I had made was to my dad. His
friend is a doctor, who told my dad that I needed to ask if it was “ascending
paralysis”. While we were with the doctor, I asked him if it was
“ascending paralysis” and he said yes. It appeared she had Guillain-Barre’
Syndrome (GBS).
I was asked if she had been sick and I informed them she
had not. I could not figure out how she got this.
She was kept in the ER until a room became available in
the “step-down” unit or intermediate ICU. At this point I still had no
idea how serious this was. Once she was admitted to the hospital and
not an ER patient, they handed me a bunch of literature on GBS.
My answer to how she contracted GBS was in the first
sentence that I read, and it said that you
can get GBS from a vaccine. She had just had a vaccine, the Gardasil vaccine
earlier that month.
As Ashlie lay in the hospital bed I watched her go from
a vibrant young girl to a shell of non-existence. She was unable to walk, she
was unable to get up to use the bathroom and as she couldn’t eat, an NG tube
was placed in her nose so they could feed her. She was given intravenous
immunoglobulins (IVIG), in the hope that this would stop the paralysis and start
it descending.
She became delirious, and she began talking like a baby
in her sleep. She was in extreme pain and I had no idea what to do, or even
still did not realize at this point how serious GBS was.
Within 24 hours things went from bad to worse. Her
respiratory system was shutting down. The GBS was paralyzing her to the point
that she could not breathe.
She was rushed to the Pediatric Intensive Care Unit
(PICU). Within minutes of being there she stopped breathing and they had to
“bag” her.
I COULD
NOT BELIEVE WHAT I WAS SEEING. MY BABY GIRL WAS DYING BEFORE MY VERY EYES.
She could no longer talk and would finger spell (sign
language) to communicate. They put her on a bi-pap machine to help her
breathe and on July 1, 2009 Ashlie was intubated. She could no longer
breathe on her own to keep alive, a machine had to do the work for her.
Her heart was racing, ranging between 160-180 bpm. It seemed as though
her heart would come through her chest. For the next 2 1/2 weeks, I sat
and watched as she continued to get worse.
Guillain-Barre Syndrome is most common in older people,
not children. It was the worst case the children’s hospital had seen in over
3 years. All treatments done to “reverse” GBS are done on adults. The
hospital had to take adult treatments and alter them for a 12-year-old. She
had more IVIG treatments done, she had plasmapheresis, MRI’s, and nerve tests
done. The damage done to her nerves was horrific. The GBS not only destroyed
her myelin, but it went into and began destroying the axon.
Slowly her body began to “heal” and the GBS started to
descend. After 3 weeks of being intubated, she began to breathe on her
own and was extubated. However, as the feeling came back, she was in
excruciating pain. Pain so bad she felt like we were ripping her skin off if
we touched her. We remained at the children’s hospital for another
week.
She was then transported to Orange County to
Healthbridge Children’s Hospital for rehabilitation. Ashlie spent another
4-weeks away from home doing physical and occupational therapy 7-days a week.
She was tired, her body hurt, her body would not cooperate at times, and we
had lots of tears. After spending her 13th birthday in the hospital we
decided it was time to go home and start our new lives.
Once at home Ashlie began physical and occupational
therapy at home with an in-home health service. We tried to keep life as
normal as possible for her. She started going back to dance class
immediately, although participation was limited. She went to our local hospital
for physical therapy.
After 6-months the therapists said there was not much
more they could do for her and she was as good as she was going to get. That
was not the answer I wanted to hear. She was only 13-years-old.
I began making phone calls and from there carried out
more research. We were told to get her into Pilates with an instructor who
had a dance background. We did just that and things started to fall into
place.
Although some things fell into place, we noticed that
Ashlie’s health began to change also. She was unable to keep foods down.
Anytime she ate, she became very ill and everything came out one way or
another.
We noticed that she would have dizzy spells and pass
out. She would have severe nerve pain at times, to the point that she could not
be touched by anyone anywhere on her body.
She said it felt as if her skin was being pulled from
her body again. I have watched her go in and out of consciousness and
struggle to breathe. She now has a rapid standing/sitting heart rate.
We have taken Ashlie to many different doctors and
specialists. At one point they almost did heart surgery on her to try and
stop her from passing out. She has been hooked up to heart monitors for 30
days and at the same time as this was happening, trying to continue to dance.
She has been seen in different emergency rooms over the
last 4 years only to be told time and time again, that there is nothing wrong
with her and that it is all in her head.
ON THE ROAD TO RECOVERY
Finally, during the summer of 2013, I was reading a
story about a girl who had been injured by the Gardasil vaccine. I never read
the comments below because I find them to be rude or critical. This
particular day, I decided to read one.
A lady mentioned a doctor who helped her niece. I
contacted her and then the doctor. We saw him in Sept 2013 and started
treatment in October 2013. It
has been a long hard road. Ashlie
has completely changed her eating pattern and takes many supplements. She has
phone appointments with him every 4-6 weeks.
One of her goals was to become flexible again. A silly
thing to most, but to her as a dancer it is everything. She is slowly but
surely getting it back. I even watched her do a backbend from a standing
position a few days ago. Something I thought I would never see again.
I regret every day giving her this vaccine, but I am so
glad she is such a fighter and has not given up. Both mom and daughter
are in this together and we will never give up. We hope too that
whatever we can achieve for Ashlie can benefit so many other girls and boys
who have also been badly injured by the Gardasil vaccine.
Dear Ashlie and mother Shawna,
Despite immense suffering your are sharing your story of pain and struggling to warn others about the dangers of the HPV vaccine. Bless your hearts. Prayers for dear Ashlie’s complete recovery.
Like many others you have no doubt been given the
impression that cases of Guillain-Barre Syndrom (GBS) after vaccination are
rare. (In fact we are often also told this about cases of other “rare
conditions” after vaccinations).
The truth is that GBS after vaccination is not rare at
all. This is because we are given misleading statistics by health authorities
and other vaccine promoters: They present a far higher number of cases of GBS
in normal populations as a whole than there is in reality. When cases of GBS
appear after vaccinations we are then incorrectly informed that they do not
exceed the numbers which are normal for the population.
Here is a more detailed, excellent explanation which I
have received from Dr. Lawrence B.Palevsky. I take the liberty of posting his
complete comment:
ARE RARE SERIOUS ADVERSE EVENTS (FOR EXAMPLE
GUILLAIN-BARRE SYNDROME, GBS) REALLY SO RARE AFTER VACCINATION?
“In response to Sandy L. It is often stated that there
is normally no higher number of GBS after vaccination than is found in the
population as a whole,” this statement is more than dubious. We are told that
vaccine safety studies are designed to evaluate whether or not vaccines
contribute to the development of adverse events.
When authorities accumulate data in a cohort of people
who are given a vaccine or a group of vaccines, they closely monitor them for
a period of time to observe any symptoms of illness, usually 2-4 weeks. They
then compare the incidence of any reported symptoms in the vaccine study
group to the incidence of the reporting of these symptoms in the general
population. The incidence of symptoms in the general population is normally
referred to as the background rate.
In every vaccine study performed in this way by the vaccine manufacturers, they have come to conclude through their statistical analyses, that the symptoms reported in the study group after vaccination are no higher in incidence than the rate at which these symptoms would occur in the general population. Therefore, they conclude, the onset of these symptoms in the vaccinated study group is not necessarily due to an adverse reaction to the vaccination(s) being studied. In other words, the symptoms in the vaccinated group were most likely to have occurred by chance, unrelated to the effects of the vaccines.
The next step in the process is to then conclude that
the vaccine(s) being studied is(are) safe.
Here’s the problem. The vaccine manufacturers are using background data from the general population; a population that is also vaccinated.
In this type of study design, the investigators are
studying a group of vaccinated people and comparing the data to a background
population of people just like them, who are also vaccinated. We can’t
conclude anything about the vaccinated population in this type of study
design because the data are being compared to themselves, and not to a set of
data from a proper unvaccinated control group. Yet, this is the main type of
study design that is used to evaluate vaccine safety.
In order to do a proper study, investigators would need
to accumulate data in a cohort of people who are given a vaccine or a group
of vaccines, by monitoring them for a period of time to observe any symptoms
of illness, and comparing the incidence of the reported symptoms in the study
group to the incidence of these symptoms that are reported in a cohort of
people who are demographically similar, and who are unvaccinated. This is the
type of study that would help us to understand the frequency and severity of
adverse reactions that could possibly occur in a vaccinated population.
This type of study, however, has never been done by the
vaccine manufacturers. Many attempts to set up this type of scientific study
have been thwarted by the courts, the vaccine manufacturers, medical
organizations, and the ideology that vaccines are nothing other than safe and
effective, and appropriately studied with the highest of scientific
standards”.
|
Wednesday, February 26, 2014
Breaking News from Japan: International Symposium on the Adverse Reactions Experienced by those Vaccinated with Human Papillomavirus Vaccines... Plus...Gardasil: Ashlie’s Near-Death Experience
Friday, February 7, 2014
Gardasil: The Decision We Will Always Regret
By all accounts, our daughter was normal before receiving the
HPV vaccine. Katie performed very well in school. She was
conscientious, hard-working and took pride in getting good grades. She
loved dancing having taken dance classes since she was 3 years old.
Katie always danced and twirled throughout our home and anywhere else she
happened to be. When Katie was 10, she joined cheerleading and became
involved in competition cheerleading. She was very active, taking four
hours of dance class every week plus spending many more hours practicing with
her competition cheer team. Katie was healthy and vibrant.
We were very diligent with our children’s health. We
never missed an annual check-up and we also followed the pediatrician’s
recommended vaccine schedule including annual flu shots. Our
pediatrician recommended the Gardasil vaccine. The Gardasil vaccine was
heavily advertised on TV. We read the vaccine Disclosure. It said
that the vaccine should not be given to those with HIV. Katie did not
have HIV so we signed the Consent.
On September 2, 2010 at the age of 11, Katie received the
first Gardasil vaccine. Katie’s first day of middle school was
September 7, 2010. Initially, we believed that her fatigue and
headaches were being caused by having to get up much earlier in the morning
for middle school. However, she never adjusted to the new schedule and
soon her symptoms began exploding.
Katie would often tell us “I don’t know what’s wrong, I just
don’t feel good.” She began sleeping a lot – over 12 hours a day and
even more on the weekends, which would allow her gather enough energy to go
to school a few days before she crashed again. She missed days at
school, dance lessons and cheer practices. Soon her illness was visible
on the outside too. Katie didn’t look good – constant dark circles
under her eyes, her skin color was ashen and she appeared listless.
To us, it seemed that her symptoms must be related to the
Gardasil vaccine. Katie’s earliest symptoms began after receiving this
vaccine. We searched the internet but only found vague information –
nothing that matched our daughter’s symptoms. We asked Katie’s pediatrician
and other specialists if the Gardasil vaccine could be related to her
symptoms but our inquiries were quickly dismissed as not having any
correlation to her illness. Katie’s earliest symptoms were a constant
headache or migraine that did not respond to pain relievers, stabbing 24/7
bilateral ear pain, fatigue not relieved by sleep, abdominal pain, nausea and
joint pain.
We called and visited her pediatrician repeatedly. We
began taking Katie to specialists including Neurologists, ENT’s, GI, and an
OBGYN and made several visits to the Emergency Room. Katie also
received many blood tests, CAT scans and an MRI. Nothing any of the
doctors did relieved Katie’s symptoms. As a matter of fact, the drugs
prescribed to alleviate her symptoms only made her feel worse. Our
pediatrician and other doctors involved with Katie’s care began suggesting
that her illness was psychosomatic and recommended that we take her to a
psychologist.
We soon found that we were on our own, dealing with a medical
issue we did not understand but trying desperately to help our
daughter.
When searching the internet with Katie’s symptoms, Lyme
disease would always come up as the search result. In addition to
asking all of Katie’s doctors if the Gardasil vaccine was the cause of
Katie’s illness, we also began asking if Lyme disease could be the
culprit. In October 2010, Katie was first tested for Lyme
disease. The results were negative as were two later rounds of
testing. We read on the internet that ELISA and Western Blot tests for
Lyme disease are unreliable and that many people who actually had Lyme
disease tested negative. Since this information is all over the
internet, we thought it was common knowledge to doctors as well.
Instead, we were emphatically told by doctor after doctor that
this was not true, that the testing for Lyme disease is highly reliable and
that there was no way Katie had Lyme disease. In April 2011, Katie
could no longer go to school or participate in dance or cheerleading – the
pain and fatigue was all consuming. Nothing any of the doctors did
provided any relief yet every doctor refused to consider Lyme disease or that
the Gardasil vaccine was related to her illness.
Katie’s list of symptoms included the following: 24/7
headaches and migraines, 24/7 stabbing ear pain, hyperacusis, fatigue,
abdominal pain, nausea, all over joint pain, constant sore throat, visual
disturbances, light sensitivity, cognitive issues such as memory and severe
comprehension problems, random numbness and tingling, weird “bug crawling”
skin sensations, generalized weakness throughout her body (it was difficult
for Katie to just sit in the shower to bathe), dizziness, fainting and heart
palpitations. She slept long hours and stayed in her bedroom shielding herself
from the noise of everyday living.
In May, we requested testing through a lab specializing in
tick-borne disease testing. Katie’s pediatrician reluctantly signed the
lab Requisition Form. This time the test results showed that Katie was
highly positive for Bartonella Henselae, a tick-borne disease also known as a
co-infection to Lyme disease. She was also highly positive for
Mycoplasma Pneumonia and the testing showed that her immune system was
struggling. Katie’s Western Blot for Lyme disease was negative.
Katie: My Gardasil Nightmare
We took those results with us to a long awaited CHOP
Diagnostic Center appointment (think the “Dr. House” of the Children’s
Hospital) and also to her CHOP Neurologist. Katie even had the classic
Bartonella rash (looks like purple and red stretch marks) surrounding her
breasts and hips which is confirmation of an active Bartonella
infection. Both doctors told us that these test results only showed
that Katie was “exposed” to Bartonella – it did not mean she had an active
infection. Both came to the same conclusion that her Bartonella rash
was actually just stretch marks. That was particularly hard for us to
believe. Katie was muscular and lean from years of dance and
cheer.
Neither doctor was concerned about her blazing Mycoplasma
Pneumonia infection nor was the fact that the testing showed her immune
system impaired. Instead, CHOP Diagnostic Center diagnosed Katie with
the beginning stages of Dysautonomia (a malfunctioning automatic nervous
system). We were told that there was no cure and that symptoms were
managed with medications. The CHOP Neurologist wasn’t in agreement with CHOP
Diagnostic Center; instead she stuck to her prior diagnosis – Chronic
Migraine Disorder with Chronic Ear Pain Neuralgia.
The Neurologist recommended that we continue with the same
treatment of 20 pills a day even though it did absolutely nothing for Katie
other than increase her nausea and head pain. We felt utter
disbelief, despair and anger.
We found our way to a local support group for those suffering
with tick-borne diseases, which provided recommendations to LLMD’s (Lyme
Literate Medical Doctors). Katie’s first appointment with an LLMD was
in June 2011. This physician spent an hour reviewing blood tests and other
medical reports we collected and asked a lot of questions that had never been
asked before. He clinically diagnosed Katie with Lyme disease and
agreed with the test results that reported active infections with Bartonella
Henselae and Mycoplasma Pneumonia. He told us that Katie was very sick.
Ironically, upon hearing that news we felt utter relief.
This was the first doctor, since Katie’s illness began over nine months
before that acknowledged she was ill. Since that time, Katie was
diagnosed with chronic Strep, HHV6, hypo-coagulation, susceptibility to
bio-toxin illness (mold and environmental sensitivities) and has acquired
autoimmune thyroid disease.
It has been three and a half years since Katie received the
Gardasil vaccine and she still remains chronically ill. She was unable
to attend school in 7th and 8th grades.
This year, Katie decided to repeat 8th grade again rather
than begin high school still sick. Katie has an IEP plan in school
which reduces her daily schedule to three core classes only. Unfortunately,
Katie is still too sick to attend school with any regularity.
Most
days, a teacher comes to our home to review the lessons she missed at
school. Some days, Katie’s pain levels are too high so that she can’t
even tolerate home tutoring. Although she longs to get back to dancing
again, she spends most days in her room sleeping or resting and trying to
cope with chronic pain. At 14 years old, Katie’s life closely resembles
a sick elderly person instead of an active vibrant teenager she should be.
After Katie was finally diagnosed with tick-borne diseases, we
put our initial suspicion about the Gardasil vaccine aside. Since the
treatment of tick-borne diseases is considered emerging medicine, I am always
combing the internet for new information on tick-borne diseases, the latest
research or treatments. To our utter disbelief, I came across an
article reporting that the Gardasil vaccine can activate a latent Bartonella
infection that was otherwise being suppressed by a properly functioning immune
system prior to vaccination.
We now believe our earliest
suspicion was correct.
We found many stories about devastating health changes
post-vaccine. These stories are eerily familiar to our
daughter’s. The Gardasil vaccine is known to activate latent infections
and viruses, such as Epstein Barr and Bartonella. The Gardasil vaccine
deregulates the immune system and that allows latent infections and viruses,
which were kept in check pre-vaccine by a then properly functioning immune
system, to activate post-vaccine. Now, there is evidence that the HPV
vaccine is linked to the onset of autoimmune diseases.
We recently consulted Katie’s LLMD and also her Primary Care
Physician, who reviewed Katie’s vaccine log and extensive medical
records. Both agree that Katie’s immune system was injured by
the Gardasil vaccine and that it was the catalyst to her cascading health
problems and chronic illness. Katie’s LLMD is now treating her for
a vaccine injury in addition to treating multiple tick-borne diseases, other
infections/viruses and autoimmune thyroid disease.
At this point, we are totally outside our insurance company
and most everything is out-of-pocket. The overall expense of Katie’s
illness greatly outpaces our income so many expenses are put on credit
cards. But the biggest cost by far is the toll that the Gardasil
vaccine has taken on our daughter’s health and well-being. We wonder if
she will ever be able to reclaim her health and get back to living a normal
life free of pain.
We deeply regret consenting to the Gardasil vaccine. We
had no idea of the severe side effects some experience post vaccine.
Every day, we wish we had been more informed. Parents beware of blindly
following your doctor’s recommended vaccine schedule. Do not rely or expect
your doctor to know everything. You must do your own research and ask
plenty of questions. Our family found out the hard way that it is
possible for a vaccine to have lasting and devastating effects.
|
Subscribe to:
Posts (Atom)