[SaneVax: Brittney Fiste eloquently describes a single day in her life after Gardasil. Despite her nearly six-year long battle to conquer the negative side effects, Brittney and her mother, Roxie, have dedicated their lives to warning others of the need to educate themselves about the real risks versus the perceived benefits of using HPV vaccines as a method to potentially avoid cervical cancer.]
ONE MORE DAY – A DAY IN MY LIFE POST-GARDASIL
By Brittney Fiste (re-published with authors’ permission)
POST-GARDASIL: A DAY IN MY LIFE
My head feels strange, like I might have a seizure today.. It is difficult to explain, but Mom seems to understand what I mean. She tries to get my breakfast made as quickly as possible. My legs are so unstable so decide to sit in my favorite recliner – maybe watch one of the shows I recorded while my food is being made.
The pain in my head, the pressure especially is worse right now. Brain fog is preventing me from understanding what is going on in the program.
Thankfully, Mom arrives with my scrambled eggs, gluten free English muffin, grapes, mint tea. She knows my stomach is not the greatest, but I am hungry! She sits with me for a few minutes while we eat. We talk a little but my mind isn’t thinking so clearly. That weird feeling in my head is worse. As Mom heads back upstairs with my tray I ask her for some sparkling water for my stomach.
The blinding pain hit me like a white-hot knife cutting through my head.. It was a searing series of jolts, like I was being electrocuted multiple times. Mercifully, an inky blackness spreads over me and everything goes dark.
Even though I’m pretty sure I’m still on the recliner I am only vaguely aware of choking on the foam that has risen in my throat during the seizure. I can feel Mom trying to wipe my mouth with a tissue. She lets me tug it from her hand to clear my mouth better. It hurts incredibly to move, but I need to get to bed. The pressure is worse in my head now.
The weird sensation is rising from my stomach into my head. Have to tell Mom, but my vocal cords are frozen.. I’m blind as well from the first seizure. Even my hearing is gone. All I can do is make motions with my hands, but Mom understands enough to lower the recliner, ease me forward, then slowly get me to my feet.
It’s a struggle to do any of it but will my body to stand. Oh, how I wish my legs would cooperate! They are weak, trembly, and unsteady. Can’t blame them, they have very little feeling left from mid thigh down. Mom slides my arms around her shoulders, then leads me to my bed – Slowly, Mom, legs are protesting, my mind tries to shout. After what seems like forever we reach my bed. Mom helps guide my hands to the edge, helping me find the blessed pillows. It’s so hard to lift my legs, but finally I’m safe on the mattress, before another seizure hits.
I have no idea how long I’ve been lying in bed when my consciousness returns. Without vision, hearing or speech it is impossible to know anything safe for the new levels of pain that run from my head to my upper thighs. Everything is achingly tender. I flinch when Mom gently strokes my ear.
She pulls her hand away not knowing how to comfort me. While attempting to sign to her I discover the Blood pressure cuff is still on my arm – It hurts! Must have whimpered because Mom quickly got it off. I sign again to the open air, hoping Mom will understand. She gives me her hand so I can spell out short words.
She squeezes my hand once – Yes! She understands my request! (We worked out a system to communicate when all of my other senses flee after a seizure. Squeeze once for Yes, squeeze twice for No. And when my confusion clears enough we spell into each others hand to ask or answer questions.)
After giving me a drink to clear my throat, Mom let’s me rest – I truly need rest to recover. My body won’t cooperate, needing a trip to the bathroom. After locating the wall by my bed, I begin to knock. I don’t know how loud it is but Mom is quickly by my bed. She holds my hand to let me know, but I flinch again from the pain. That hand is swollen a bit as well. Mom waits for me to sign, which is easy this time. She gently guides me to and from my destination. Helping me as best she can. Finally back in bed, she signs into my left hand to rest. Wish my hearing would release – I need to listen to my ocean CD. It is so relaxing..
After lying in my bed a few minutes, aching from the seizures, my hearing suddenly returns. Silent Tears slide down my face unbidden, but I can’t help it. Every time my senses begin to return, there is relief, joy, thankfulness. Knocking on the wall again, Mom returns, but I can hear her softly speaking, praying for me. When I respond she is also relieved that my hearing returned. She immediately turns on my ocean waves CD. She whispers she loves me, then allows me to drift fitfully to sleep.
Several hours later I awake, realizing immediately that my vision is returning. It isn’t the greatest, but I have color and can distinguish objects. My legs are a little less wobbly so I can get my own water. Eventually I can get out of bed, go up to the kitchen to see my mom. She is surprised that I’ve negotiated the steps on my own, giving me a smile and a gentle hug. My body feels I have been in the fight of my life, tender, aching, sore, but my head pressure is improved some. The weird sensation is almost gone.
Mom notices one of my eyelids is drooping, but it’s hard to miss. She just smiles, and then asks me if I’m hungry. Since my voice hasn’t returned I sign in a little while. After I get a glass of mint tea, Mom helps me back down to the family room.
My vision still isn’t the greatest but I can watch Duck Dynasty! The show makes me laugh which I desperately need until supper.
My stomach isn’t doing the best right now. Ate something with gluten a couple of days previous, so I’m paying for it. Mom has given me several choices for supper, but nothing sounds good. My dad had just finished eating, giving me a soft kiss in the forehead. He has to go to a meeting at church, so he can’t linger but a few minutes. How I miss our dates we had while growing up! It’s been a long time since we’ve been able to have dinner and a movie night. I smile at my dad, trying not to let him see my pain. The vaccine injury has been very hard on both my parents. Not an easy thing to live with, but this is my life now.
Mom finally makes me quinoa with chicken and organic veggies – it tastes good so digesting will be easy, I hope. After watching a movie with mom I decide to take a shower. Couldn’t get my IV today, but I’m very determined to go tomorrow! Mom isn’t crazy about the Idea, but lets me know she will be close by. I am thankful that I can do this much finally, but knowing she’s close if I need help is reassuring. After my second dose of Gardasil Mom had to bathe me, feed me; help me in and out of my wheelchair. Six years later I’m doing some things on my own again!
During my shower I begin to overheat. Reducing the water temperature isn’t helping. My head and stomach are way too hot now, so I quickly shut off the water, open the door while trying to call for mom. Even with the door wide open, my towel is too hot as well. As the waves of nausea strike, I grab my trash can. Mom arrives as I lose my super.
My body really seems to hate me, though my voice has unexpectedly returned! At least something positive has just happened! Wobbly legs and trembling arms prevent me from drying off quickly. With Mom’s help though, I’m partly dressed by the time I hit my bed. My face is on fire from the flaming nerve endings that bloom on my body randomly. The nausea is pretty bad, but mom fans me best she can. Finally, after what seems an eternity, the flame in my face and stomach fades. I’m still trembling from the exertion but at least I’m not tossing my cookies.
Mom gets me something for my stomach, Bromalain – best thing I’ve ever tried for nausea! It settles my stomach to the point I can finish getting ready for bed. Thank you, Lord, for getting me through one more day. Tonight, hopefully I will sleep. Tomorrow will be a better day…
Brittney and Roxie Fiste
(Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The link to the survey is at the end of Brittney’s article.)
Other side of the story: Members of a support group for people injured by cervical cancer vaccines face reporters Friday in Tokyo after they filed a request for the government to end subsidies for the injections. | KYODO
KYODO AUG 24, 2013 ARTICLE HISTORY
Teenagers injured or disabled by cervical cancer vaccines are stepping up efforts to permanently end the government’s subsidy program for injections of Cervarix and Gardasil.
On Friday, eight teens, accompanied by their parents, called out health minister Norihisa Tamura over the issue. The schoolgirls, aged from 14 to 18 — including four in wheelchairs — and their parents are members of the Nationwide Liaison Association of Cervical Cancer Vaccine Victims and Parents.
Tamura was handed five petitions in a meeting with the group at the Health, Labor and Welfare Ministry, association chief Mika Matsufuji said afterward. The request to abolish the vaccination program topped the list.
The other petitions included one asking for stronger government efforts to identify the cause of the side effects and to find therapeutic remedies. The side effects range from convulsions and seizures to severe headaches and even partial paralysis.
In April, the Diet revised the Preventive Vaccination Law so that girls aged 14 to 18 could get the cervical vaccine shots for free.
But an advisory panel to the health ministry later urged that the government stop recommending vaccinations for cervical cancer after concluding the reported symptoms were likely being caused by the vaccines.
The ministry reportedly complied on June 15 by telling local governments to stop recommending that girls 12 to 16 get vaccinated with Cervarix or Gardasil in light of reports about chronically adverse reactions. The local governments, acting on behalf of the central government, had been telling teens to get the shots.
At Friday’s meeting with Tamura, the schoolgirls, parents and the association asked the government to revise the vaccination law again to officially remove cervical cancer vaccines from the list of those subsidized by the central government.
“There is not a single moment when I am not suffering pain, and I want the government to find a remedy,” said a 17-year-old high school senior from Yokohama.
“I do not want the government to resume recommending this vaccine.”
The girl said she started getting severe pains throughout her body, including her head, after receiving her third Cervarix injection in April 2011. The process requires three injections in six months.
A 16-year-old in a wheelchair whose hands and legs were convulsing during the meeting with Tamura and at the news conference, said she can’t possibly be alone.
“There must be numerous girls who are suffering symptoms similar to mine without knowing their conditions stem from the vaccines.
“I took this action (going to the press) because I want those girls to become aware of the link” between the vaccines and their disorders, she said.
Toshie Ikeda, a member of the Hino Municipal Assembly who has been secretary-general of the association and attended Friday’s meeting with Tamura, quoted him as saying: “I am aware of the necessity to create a team to study this problem and gather information on the actual state of damage that has been inflicted nationwide.”
Matsufuji, whose daughter is among the four in wheelchairs, quoted the minister as telling the petitioners that the decision will be made after the government completes its investigation.
According to Dr. Sotaro Sato, who has examined many cervical vaccine victims, the convulsions, inability to walk, and involuntary hand and toe movements are being caused by encephalomyelitis, or the inflammation of the brain and spinal cord.
“Cervical cancer vaccines, which are chemically bound to special types of adjuvants, often trigger encephalomyelitis,” he said.
“Since the vaccines cause autoantibodies against the brain’s neuronal fibers to be produced in many cases, they have triggered demyelinating disorders,” he said, adding they have also induced many cases of cerebral vasculitis.
Cerebral vasculitis causes the body’s immune system to attack blood vessels in the brain, often leading to hemorrhaging, said Sato, who runs a hospital in Osaki, Miyagi Prefecture.
The marketing of Cervarix, made by GlaxoSmithKlein PLC of Britain, was approved in 2009. This was followed by Gardasil, made by Merck Sharp & Dohme (better known as Merck & Co. in the U.S.), in 2011.
The ministry says that it has received a total of 1,968 reports of adverse reactions and that 3.28 million girls had been vaccinated as of March 31. The association says that’s just the tip of the iceberg.
Ikeda said doctors often reject pleas from their patients’ parents to file reports about adverse reactions, which are needed to obtain compensation from the government.
This is either because they are afraid of being held responsible for the shots or because they are ignorant the vaccines can produce side effects, he said.